Tim Berners-Lee, the inventor of the Internet, wrote for the Guardian outlining his 3 main concerns for the World Wide Web.
Largely, the Web has become the open market of knowledge and opportunity that he set out to create. But, his concern we wanted to focus on was top of the list: We’ve lost control of our personal data.
As Mumoactive is a health tracking and communications platform, personal data is something we take seriously – and we believe in you owning your personal data.
First, here’s Tim’s concern:
The current business model for many websites offers free content in exchange for personal data. Many of us agree to this – albeit often by accepting long and confusing terms and conditions documents – but fundamentally we do not mind some information being collected in exchange for free services. But, we’re missing a trick. As our data is then held in proprietary silos, out of sight to us, we lose out on the benefits we could realise if we had direct control over this data and chose when and with whom to share it. What’s more, we often do not have any way of feeding back to companies what data we’d rather not share – especially with third parties – the T&Cs are all or nothing.
Your Personal Data Is Yours
We agree 100% with Tim Berners-Lee.
Because we built Mumoactive to help ourselves and our loved ones to manage long-term conditions, we were able to build our technology to ensure that us and all of our users owned the personal data being entered into it.
We also designed our business so that we do not need to sell personal data.
We agree that you should have direct control of your data. Realistically though, you don’t want to have a server running in your house – whirring away, collecting dust, likely hacked by that Generic Enemy State in Top Gun.
You need to ensure that your data are securely stored, available where you need it, and only available to those you say can see it. That means you need to rely on us to service those needs with the best technology and security on the market. We have UK national standards in place to protect your data and if something does go wrong we have governance in place to address the problem. Kind of like posting a bouncer at your door.
We’re not selling your data. We’re not collecting emails for third-party spam lists.
Your data are yours. You can agree to share data with each person or organisation involved in your care, but the choice is your’s. If you just want to use our service to track your LTC health values, that’s fine – we’ll host your data securely .
Whilst we believe big-data research is hugely important, we also believe that the sourced data must be anonymised at source before any research should go ahead. It also must not be able to identify individuals. We don’t work with researchers at the moment, but we will be working with researchers in the future. You will always be notified if we would like to anonymise your data and get researchers working to make managing your long-term condition easier. But you can opt-out.
End of the day – we believe in an Internet that ensures your personal data are yours.